This Day Sucks

ARGH. That's how I feel just now.
My left kidney is playing up today and it really hurts.
Gemma has been calling me to make sure I'm OK, which does help me feel good.
I don't know what I would do without Gemma now. I'm sure she is an angel that has been sent down to look after me!

Another way of feeling good during a pain attack, is my little bunny Fudge.
Fudge will sit on her rug in front of the TV and watch me for a while. Then when I'm not looking, she will sprint over and launch herself up onto the couch and onto me. Only sometimes she will dig her paws right into my kidney! But it doesn't matter, because she will then sit on my chest and stare at me before licking my face all over.
Now if this happens to you and it doesn't make you feel good, then something must be wrong!

The worst thing about this kidney pain, is the fact it stops me doing stuff around the house for Gemma. I just want one day without any pain so that I can blitz the house and get it nice and tidy for her. I truly hate the fact I cant even stand doing the dishes for long before the pain gets really bad. All I want is to give Gemma a nice easy life when she gets home from a long day at work.

On Facebook, there are a few groups for sufferers of cystinuria. In these groups, I have found some fantastic new friends who make me feel like I have known them all my life - they feel more like family that I just have not yet met.
If I am having a bad day, I know they will be there for me and know exactly how I feel. And the same is for if any of them need someone to talk to, they will always find someone soon - including myself.

Also in the groups is the saviour of cystinurics - Dr David Goldfarb - who is doing research into the disease with the hope of finding a prevention and possibly a cure. Dr Goldfarb and his team give myself and a lot of others hope that we may not have to suffer this for too many more years. Although I do know that it is not definite that a cure can be found.

But it's nice to have hope after 20 years of pain.